Digital: the new frontier in healthcare

Everything is affected by the digital revolution. The opportunities for improving healthcare could be extraordinary. Interdisciplinary research is key to this. The UCL Festival for Digital Health will connect UCL’s world-class research in computer science, engineering, medicine and health service delivery. Together they can have a direct impact on the health and wellbeing of individuals, communities and populations. Collaborations across engineering and healthcare will make UCL a leading institution for Digital Health research. Join us to discover new technologies, Share achievements, Network with staff, industry and healthcare and Create new collaborations – a new momentum!

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Who owns the data?: OpenData for Healthcare

1st July 2014, 9:00am – 11:00am

Venue:

  • Closed venue

Chairs:

Sarah Chaytor, Patty Kostkova

Reserve Your Place

The potential of research on large medical datasets to save lives is becoming of increasing interest to researchers worldwide. It enables a better understanding of disease causes and side-effects of treatments and supports a personalised medicine approach. Developments such as crowdsourcing, participatory surveillance, patients pledging to became ‘data donors’ and the ‘quantify self’ movement (where citizens share data through mobile device-connected technologies) may be real game-changers for our knowledge of disease, leading to more accurate diagnostics and improved delivery of healthcare and treatment.

However, despite the clear advantages offered, there remains serious concerns over data confidentiality; what happens to public data once it is shared? Issues such as user trust, data privacy, transparency over the control of data ownership, and the personal intrusion of data analytics are becoming increasingly scrutinised at national and international levels. This can be seen in the recent backlash over the proposed implementation of care.data, which enables NHS patients to share data with researchers and, controversially, with businesses for commercial exploitation.

In the absence of transparent regulation, and during the extended consultation period on the care.data proposals, this roundtable policy discussion event will address this important debate. Leading UCL experts, industry representatives, policy makers, healthcare practitioners and patients will come together to discuss the pitfalls and opportunities of big data in healthcare, issues of responsibility and accountability, and how public policy can support a balanced agenda that safeguards personal information whilst enabling the use of data to improve public health.

Please note: this is a closed event, through invitation only.

We have now posted a summary on the roundtable discussion which can be found here!

Chair: John Tooke
Venue: Closed venue
Helen Brewer Postgraduate Fellow
Parliamentary Office of Science and Technology
Simon De Lusignan Director
RCGP Research and Surveillance Centre
Ed Fottrell Lecturer
UCL Institute for Global Health
Ben Goldacre Research Fellow in Epidemiology
LSHTM
Graham Hart Dean Faculty Population Health Sciences
UCL Population Health Sciences
Peter Knight Deputy Director, Research Information and Intelligence
Department of Health
Patty Kostkova Principal Research Associate
Computer Science, UCL
Phil Koczan Chief Clinical Information Officer
UCLPartners
Corinne Marsolier Director
Cisco Consulting Services, Life Sciences, Health and Care
Rachel McKendry Director
i-sense, the EPSRC IRC in Early Warning Sensing Systems for Infectious Diseases
Emma Ross Consultant
Chatham House Centre on Global Health Security
Angela Sasse Professor of Human-Centred Technology; Director, Research Institute in Science of Cyber Security
UCL Computer Science
Ralph Sullivan GP and Chair, Health Informatics Group
Royal College of General Practitioners
John Tooke Vice Provost (Health)
UCLPartners

Roundtable Discussion - 2 hours

Starts: 9:00am   Ends: 11:00am
This will be a closed roundtable discussion. Mind this space, we will post up summaries of the themes of the debate in blog format, aiming for more public interaction through social media, Twitter in particular (@UCL_FDH).

We have now posted a summary on the roundtable discussion which can be found here: http://www.fdh.ucl.ac.uk/owns-data-opendata-healthcare-summary-roundtable-discussions/
Speakers: Helen Brewer, Simon De Lusignan, Ed Fottrell, Ben Goldacre, Graham Hart, Peter Knight, Patty Kostkova, Phil Koczan, Corinne Marsolier, Rachel McKendry, Emma Ross, Angela Sasse, Ralph Sullivan, John Tooke